The day, or days in this case, that every parent with a cancer kid dreads. Not knowing the results of until you’re face to face with the oncologist is one of the harder parts of this journey.
Scanxiety is the word most often used in the pediatric cancer community. Normally, I’m not all that affected by it. I understand that God’s plan often is not my own and that the results will be no matter how much anxiety and worry I poor into them. Either way, I rationalize, we’ll do something for treatment… or not.
This time, it was a little different. Perhaps its that 10 years of this is finally wearing me down. While I never felt anxious, I could tell that my body was reacting… 5 or less hours of sleep every night for the past week and the raging headache I’ve got right now attest to that.
Ben, on the other hand, takes all this in stride. It’s almost comical… if it weren’t his life we were dealing with. When I asked him if he understood the significance of the results he said, “Not Really.”
While I think deep down he understands, maybe he’s just also tired and puts any news out of his mind as quickly as he can. Either way, he’s had one heck of a journey and it will continue for the foreseeable future.
So, about that Very Good Partial Response. What that means in laymen’s terms is that the treatment did what it was supposed to do. The lesion in his skull is effectively gone and the spot in his chest, while still there, is insignificant. Had it not been for the chest thing, he would have gotten a Complete Response.
If this had been a test he would have scored in the 90-99% range.
We’re happy with that. It means that MIBG and I-131 worked on him. It also means that we get to do it all over again in October, but at least this time we’re prepared for it.
Thank God for the good results today!