When you get the word that your child has relapsed again life may seem like its stopped, but it really hasn’t. Ok, maybe it does for a day or two while you come to grips with the diagnosis and get your stuff together. However the world keeps spinning, responsibilities like other children are still there and the animals still need fed.
So, as we wait to hear back from Children’s on the next steps in Bens battle we’ll keep marshaling on. That includes taking time out to enjoy life every once in awhile. We did just that today.
Ben, Madeline, Sarah and I went to Elitch Gardens, Denver’s downtown theme park, to have some fun and take our minds off the cancer for awhile. The day was beautiful and, I think, fun was had by all.
Enjoy the pics and expect another update soon. Hopefully we’ll know tomorrow whether or not Cincinnati has a spot open for MIBG. If so, we should be doing the first round shortly after the kids get back from Wapiyapi. (Dr. Macy insisted that Ben attend camp, just to keep that bit of normalcy. We agree!)
Also, please continue to pray for Ben and all the other kids battling cancer.
Well, this is not the post I was expecting to write today. Ben has been in Kansas City most of the week getting his 3 month scans and hearing test for DFMO treatment.
Unfortunately his MIBG scan came back showing a small lesion under his left clavicle. Dr. Neville said it’s about 2cmx1.5cm, which is very small.
The good news is that at this point it probably hasn’t metastasized through his body.
The bad news is that we’re back in the belly of the beast. Most likely Ben will require surgery to resect the lesion, some low-dose chemo and radiation. However, we truly won’t know until he gets back here and we consult with Dr. Greffe here in Denver.
Oy vey… so much planned for this summer that may or may not happen now.
Please pray for healing. Not just for Ben but Justin and all the other kids affected by this stupid, insidious cancer.
The kids and I went horseback riding this past weekend. It was the first time Ben had actually been on a horse that was guided by someone else.
We took Madeline’s friend, Tayti, along with us.
All told it was a fun little trip and I’m looking forward to doing it again with them soon.
Well, except for the sore muscles. I think we can all do without that.
We celebrated Maddy’s birthday this past weekend. Everyone had a blast and the cake and ice cream were fantastic.
Many thanks to all the friends who let their kids come hang out!
Ben had the privilege of attending the Shining Stars camp this past week in Aspen, CO. This camp is put on for cancer kids and involves skiing, snowboarding snowmobiling and lots of fun in the snow.
I think Ben had a great time, as you can see from the attached picture. He came back wind-burned, tired and severely in need of a shower (not to mention a haircut). Ben will post some more pictures when he has a chance as he took a lot of them.
On another note, please keep our friend Justin in your prayers. He is in the midst of fighting cancer once again, number 6, and needs all of you prayer warriors to keep him lifted up.
We’re looking forward to some great spring and summer fun and hope to have more posts soon.
Another promising drug that might fight Neuroblastoma. Keep ‘em coming!
Lab research suggests experimental drug could target neuroblastoma
“Dendritic cell vaccine for relapsed neuroblastoma patient induces complete remission”
This is way cool. I can only pray that this kind of thing works for other cancer warriors.
It’s been quite awhile since I last updated Ben’s blog. Honestly their isn’t much news lately that hasn’t been reported before.
Ben is still clean and continues the DFMO through Children’s Mercy Hospital in Kansas City. He is scheduled for his next round of scans in late February.
Christmas was great as both kids got new bikes with gears. One thing about living in Colorado is the altitude is a bear, especially when riding up even small hills. Now that both kids are geared we can take some much longer rides. Maybe by summertime I can convince them to go longer than 20 miles with me.
I’ve also decided to teach both of them to shoot. We went to the range this past weekend with their new guns and shot 200 rounds of 22LR. Both did an excellent job and I hope to get them both out again soon.
Here are a few pics from our outing.
Well, I broke down (again) and got another dog. This time we went to the Denver Dumb Friends League in Castle Rock and came away with Misty. She is a two year old Lab Cattle Dog mix. Oddly, the previous owners turned her in because she was too hight energy.
She is a feisty one. However, she’s house trained and already knows a handful of commands.
The kids love her and are already fighting over which one gets to walk her.